Parent's Corner

The EpSSG Association aims to collaborate directly with parents by creating a group.

To date 8 parents have been involved from France, Italy, Denmark, Belgium and Norway and they have established their own
support network through a WhatsApp group and telephone conferences.

They have participated in our twice-yearly meetings since May 2016.

The parents group has recently provided really helpful feedback in different issues concerning EpSSG studies and the newsletter.

We are also working together on information for a “parent corner” of the new EpSSG website.

We are aiming to have a representative from each of the main EpSSG countries in the group.

J. Chisholm